The information collected, as part of your patient record for cataract surgery or AMD treatment, and used by NOD includes:
- information on your vision before and after surgery
- cataract surgery outcome (complications of surgery and vision after surgery)
- other medical conditions that affect cataract surgery
- post-operative refraction (the need for glasses)
- age, gender and ethnicity (where available)
- unique patient identifier (an audit code number which cannot specifically identify anyone personally, the data received by the RCOphth NOD is anonymised)
The unique patient identifier shows us if you have had cataract surgery performed on both eyes. We cannot identify any individual patient from this information. The hospital responsible for your cataract surgery can identify an individual patient from this information as it is part of your care record. Information submitted into the audit will be retained for the duration of the audit.
Age-related Macular Degeneration (AMD)
- Visual acuity (your ability to discern the shapes and details of the things you see)
- The change in visual acuity over time (adjusted for other variables which might affect this)
- Treatment within 14 days of diagnosis, as recommended in the National Institute for Health and Care Excellence (NICE) AMD clinical guidelines: www.nice.org.uk/guidance/ng82
Anonymised data submitted to the NOD shows us if you have had AMD treatment on one or both eyes. The hospital responsible for your AMD treatment can identify an individual patient from this information as it is part of your care record. However, we do not see any information which identifies individual patients. Information submitted into the audit will be retained for the duration of the audit.
How is the information used?
The anonymised patient information we receive for cataract surgery and AMD treatment is analysed, and the audit report will help hospitals and those providing patient care to identify improvements and minimise the risks associated with surgery and treatments.
The risks from surgery and treatment is, on average, quite low. The NOD aims to improve risks and complications through analysis of the data and by informing patient research. The information also helps to nationally benchmark, improve and balance care across the UK.
There are strict rules about what happens to your data. Information collected is available to a very small number of specially restricted staff on the audit team.